FAQs about the MS Patient Powered Research Network
What is the Multiple Sclerosis Patient-Powered Research Network and how does it relate to iConquerMS™?
The MS Patient-Powered Research Network (MS-PPRN) is a network of organizations and individuals, created and managed by the Accelerated Cure Project for MS, who are participating in patient-powered research into the causes and mechanisms of MS. Funded by the Patient-Centered Outcomes Research Institute (PCORI) to establish PCORnet, the network is supported by an integrated IT and communications platform that allows participants to share data and connect with the research community. The MS-PPRN is a key component of the iConquerMS™ initiative.
PCORnet (the National Patient-Centered Clinical Research Network) is a large, highly representative, national network for conducting clinical outcomes research to improve healthcare. The network’s Coordinating Center will integrate data from 29 PCORI-funded health data network projects, including the MS-PPRN.